View the 2016 National NET Patient Conference FREE

I hope everyone had a wonderful NET Cancer Awareness Day and had a successful day spreading the word about NET Cancer. Please remember that you still have TODAY (November 12th) to submit your pictures to be featured in NCAN’s Awareness video. To submit, please send your pictures to NETCANCERAWARE@AOL.COM.

Here’s the information that you’re really here for: NCAN has released the video of the 2016 NATIONAL NET PATIENT CONFERENCE from this past September in NOLA for FREE! Free viewing is only available THROUGH NOVEMBER 30th!!! To view the 2016 NATIONAL NET PATIENT CONFERENCE FOR FREE, please click here!

Be sure to view it and keep a look out for NCAN’s new programs due out next month!

NET Cancer Day and Other Exciting News

Happy NET Cancer Day, Zebras and Co!

I hope everyone is ready to get out and spread awarenesss of NET Cancer all day.

NCAN has been busily preparing for today:

I’m so happy to announce NCAN’s NEW website launch today! Be sure to take a look right here to check it out!

Also, to celebrate NET Cancer Day, NCAN has released the recordings from the 2016 NATIONAL CONFERENCE from NOLA this past September! Be sure to check these out as they are only FREE through NOVEMBER 30th! Be sure to keep an eye out for new programs from NCAN due out THIS DECEMBER! To take a look at the 2016 NATIONAL NET PATIENT CONFERENCE, please visit HERE!

In celebration for NET Cancer Day and due to the large volume of photos and requests for more time to submit, NCAN will be taking your ZEBRA RIBBON and NET Cancer Day photos through November 13th. Please submit all and any photos of you celebrating today to netcanceraware@aol.com. This video will be released on or about November 15th!

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LET’S PUT AN END TO NET CANCER! GET YOUR ZEBRA ON!

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Favorite Food & Drinks in New Orleans

Happy Friday Zebras! With less than a week out to plan, I’m sure many of you are looking for things to do outside of the hotel and conference. I’ve made a little list of some of my favorites for you!

Starting out, the first absolute must-have is the classic beignets. If you haven’t had a beignet before, it is a delicious fried dough pillow covered in lots and lots of powdered sugar.

beignets

You can find beignets in a lot of locations throughout NOLA but my personal favorite and probably the most well known are from Cafe Du Monde. Cafe Du Monde has a bunch of locations but the classic location is on Decatur Street, where you can run into this crazy location and hopefully grab a table to enjoy your treats and enjoy a Cafe Au Lait while people watching in this buzzing location.

For more information on Cafe Du Monde, you can find their website here!

 

I’ve gone back and forth with drinking coffee but when in NOLA, I have at least a cup a day. My next must-have is coffee from probably what is my favorite coffeehouse ever. PJ’s Coffee has many different flavors for all taste types as well as assorted other drinks and pastries for a quick breakfast or just an afternoon pick-me-up. My personal favorite drinks include the seasonal flavors Southern Wedding Cake, English Toffee, Frozen Hot Chocolate, and even a Mimosa!

pjscoffee

For PJ’s Coffee locations, you can find them here!

 

If you like burgers, you will LOVE Yo Mama’s Bar & Grill! I came across Yo Mama’s on accident. I’m allergic to seafood and many of the places my friend and I had looked at menus for didn’t have many nonseafood options. The last restaurant we went to, we asked the host if he had a recommendation for us where we could just get some burgers and a drink and he gave us directions to Yo Mama’s. Funny enough, if you don’t know what you’re looking for, you’d probably just walk right past it! We did! It’s a small, hole in the wall bar but the food is delicious! I ordered a plain Cheddar Cheese Burger with a baked potato on the side and was blown away! After taking some family back for dinner that night, they had gotten the Peanut Butter Burger, which has peanut butter and bacon on it, I knew I had found a gem of a location.

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To see the full menu and to get more information on Yo Mama’s Bar & Grill, you can visit here!

 

I LOVE martinis so finding a martini bar in NOLA was high on my list of priorities. A personal recommendation sent me straight to The Bombay Club at 830 Conti Street and it didn’t disappoint! They have many specialty drinks and going in a group of 8, we each had something different that we all enjoyed. The atmosphere was great, the live music was good and the company was even better. The delicious martinis were just the cherry on top.

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For the menu and more information and the backstory of The Bombay Club, you can find on their website here!

 

No NOLA trip is complete for me without grabbing a Voodoo from Lafitte’s Blacksmith Shop Bar. Located on the corner of Bourbon and St. Philip, this historic building is considered the oldest structure in the U.S. to house a bar. Voodoos are SO delicious and very very strong. Even a small one of these, I was only able to drink maybe a quarter of it before I had to stop drinking it, in fear of not being able to continue drinking at the rest of our stops. If you grab a Voodoo, I wouldn’t plan on needing to drink anything else!

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For more information on Lafitte’s Blacksmith Shop Bar and its history, click here!

 

Lastly, is Mr. B’s Bistro. I really don’t have enough great things to say about Mr. B’s. The food and service is always amazing! You can find Mr. B’s at 201 Royal Street. If you plan on heading to Mr. B’s Bistro, you will definitely want a reservation!

mrbsbistro

To see Mr. B’s Bistro menu or to make reservations, you can visit their website here!

I hope you guys enjoy my favorite NOLA spots! If you happen to check any of them out, be sure to let me know your thoughts and share your favorites with me!

Also, before you make any plans, remember to check out our conference agenda to not coincide with our unbelievable weekend! If you need the agenda, you can find it here!

*Many photos were taken from Google. Only Yo Mama’s photo is my own.

The Countdown is ON!

The countdown is on as today we are just over ONE WEEK OUT from the 2016 National NET Patient Conference weekend in New Orleans, LA!!

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Unable to attend? Subscribe to NETCancerAwarenessBlog for exclusive sneak peaks and updates about the 2016 National NET Patient Conference! Something tells me there will be some vlogging going on that will have some important information that you WON’T want to miss! =]

NCAN is so excited as we get our last minute details ironed out for you!

Look closely here for some addional details and events that have not yet been published:

Thursday- In addition to the opening session, which includes a patient panel whose panelists are medical professionals AS WELL AS patients you will enjoy a really exciting cooking demo featuring neuroendocrine cancer patient friendly recipes.

Friday- 5 PM – Grab a smoothie and a cookie made with neuroendocrine cancer patients in mind, courtesy of one of the conference sponsors, Novartis.

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6 PM – join us for a light snack and networking while you wait for a private comedy show….

7 PM – ENJOY THE COMEDY OF NATIONALLY ACCLAIMED COMEDIAN AND EMMY AWARD WINNING WRITER STEVE MAZAN. STEVE WILL BE PERFORMING A PRIVATE SHOW JUST FOR ATTENDEES OF THE CONFERENCE. DON’T MISS THIS ONE!

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This event is sponsored by: NCAN Bandaid

Sunday- 8 AM to noon – Group Leaders Meeting. If you are a group leader and have not signed up yet, please call us ASAP at 866-850-9555 or email info@netcancerawareness.org if you would like to attend. You MUST sign up today if you would like to attend.

Here’s a more detailed look:

Thursday

Noon- Registration table open

1 pm – 4 pm- Thursday talks and patient panel

4 pm to 6 pm- Novartis Cooking Demo

6 pm to 9 pm- Welcome reception

 

Friday

7 am- Registration and breakfast

7:45 to noon- Morning general session

9:30 – 9:45 break

noon to 1 pm- lunch

1 pm to 5:15 pm- Afternoon general session

2:45 – 3:00 break

4:30 pm – 6:15 pm- NET-friendly smoothies and cookies provided by Novartis

6:00 pm – 7:00 pm- Pre-show snacks

7:00 pm – 7:45 pm- Comedy show- Laughter is the Best Medicine starring Steve Mazan

 

Saturday

7 am- Breakfast

8 am – noon- Morning general session

9:30 – 9:45 break

noon – 1 pm- lunch

1 pm – 5:30 pm- Afternoon general session

2:45 – 3:00 break

 

Sunday

8 am – noon   Group leaders’ meeting

 

Also, here is the agenda for our General Sessions:

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A few more reminders:

  • Please bring extra layers of clothing! The conference rooms DO get cold, please be prepared!
  • For patients: please bring extra medication, in case of emergency! And take pictures of your medication bottles on your cell phone in case you were to lose them!
  • As always, the conference is a safe space for patients. It is a place for learning about a better quality and quantity of life. Please refrain from self-advertisement and solicitation at our conference. If you are caught soliciting, you will be asked to leave for the remainder of the conference without refund. NCAN and our sponsors thank you for understanding and helping us keep this space focused on what is important.

Keep your out for a post on Friday about some of my MUST SEEs and MUST HAVEs while in NOLA! Be sure to subscribe now to be the first to get it right to your inbox!

At the 2016 National NET Patient Conference, Laughter is the BEST Medicine!

Looking for a few laughs on Friday night at the National NET Patient Conference?

NCAN is so excited to finally announce the Friday night social event sponsored by NCAN for the 2016 National NET Patient Conference taking place in just a few weeks! This is a great time to network and relax, taking a break from all the heavy information that will be introduced over this amazing, jam packed weekend!

Introducing Emmy Award winning writer, speaker, comedian and fellow cancer survior Steve Mazan:

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Come enjoy a hysterically funny show- ‘Laughter is the Best Medicine’- just for attendees of the 2016 National Neuroendocrine Cancer Patient Conference, starring Emmy Award winning writer, speaker, comedian and fellow neuroendocrine cancer survivor Steve Mazan. Steve is known for his Emmy Award winning writing for The Ellen DeGeneres Show and for performing his comedy on The Late Show with David Letterman, BUT he is most well known for his award winning film, ‘Dying to Do Letterman.’ 

Steve will be hanging out with the crowd, signing autographs, and he will have some merchandise to give away! There will also be a raffle where you can win an autographed DVD of one of Steve’s best shows!

On your way to the show, from 5 pm to 6:15 pm, stop for some healthy and delicious smoothies and cookies provided by one of the conferences sponsors. These tasty treats were designed specifically with neuroendocrine cancer patients in mind. Doors to the show will open at 6 pm and light refreshments will be served. At 7, it’s time for the show, sponsored by the Neuroendocrine Cancer Awareness Network! 

It’s all happening right in the same hall as Friday’s General Session so it’s easy to get to. This is a great time to network and relax, taking a break from all the heavy information that will be introduced over this amazing, jam packed weekend!

Want to learn more about Steve? Visit SteveMazan.com or check out DyingtoDoLetterman.com for more information on Steve Mazan, his cancer journey, and to check out Dying to Do Letterman. Also, check out this Ted Talks that Steve Mazan did back in 2011: It’s Never too Late to Live your Dreams.

For more information on the 2016 National NET Patient Conference in New Orleans, LA September 22nd, 2016 to September 24th, 2016, please click here!

NCAN Bandaid

Speaker Spotlight – National Conference Edition Part 11

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James R. Howe V, MD

uofiowaclinic

Bio:

Director, Division of Surgical Oncology and Endocrine Surgery

Co-Director, Neuroendocrine Cancer Clinic

Professor of Surgery  – Surgical Oncology and Endocrine Surgery

Education:

MD, University of Vermont College of Medicine

Fellowship, Surgical Research Fellow, Washington University

Residency, General Surgery, Barnes Hospital

Fellowship, Clinical, Surgical Oncology, Memorial Sloan-Kettering Center

Licensure and Certifications:

Iowa Medical License, Iowa Board of Medicine

Certified, Advanced Trauma Life Support

Board Certified, General Surgery, American Board of Surgery

Qualifying Examination, American Board of Surgery

Recertification Examination, American Board of Surgery

Research Summary:

I am a Surgical Oncologist and Endocrine Surgeon who specializes in taking care of patients with cancers of the pancreas, liver, GI tract, soft tissue sarcoma, melanoma, thyroid, parathyroid, and adrenal glands; I am co-director of the neuroendocrine cancer clinic, Division Director of Surgical Oncology and Endocrine Surgery, and Professor of Surgery at the University of Iowa. My area of research expertise is in Familial Cancer Syndromes, genetic linkage, gene discovery, and gene expression studies. My postdoctoral training at Washington University under Helen Donis-Keller, Ph.D. and Samuel Wells, M.D., was directed at the identification of the gene for Multiple Endocrine Neoplasia Type 2. As a faculty member, my focus has been the genetics of Juvenile Polyposis, which led to the discovery of the 2 predisposing genes. More recently, I have developed a large clinical practice and research interest in the genetics of neuroendocrine tumors (NETs). Our current research focus is the study of gene expression profiles in pancreatic and small bowel NETs to identify new targets for imaging and treatment, and collection of families to search for predisposing genes.

For more information on Dr. James Howe and the University of Iowa Hospitals and Clinics, please visit their website here. You can also view Dr. Howe’s academic profile, here.

You can read Dr. Howe’s publications by clicking here.

For information on the Neuroendocrine Cancer Program at the University of Iowa Hospitals and Clinics, you can find that here.

To make an appointment, please contact:

University of Iowa Hospitals and Clinics: 200 Hawkins Drive, Iowa City, IA 52242

Phone: (800) 777-8442 or (319) 356-1727

Dr. Howe at the 2016 National NET Patient Conference:

Topic: Hepatic Resection vs Liver Directed Therapy

When: Saturday, September 24th, 2016 at 8:30AM*

SIGN UP NOW FOR THE 2016 NATIONAL NET PATIENT CONFERENCE in New Orleans, LA from September 22-24th to see Dr. Howe and 19 other experts speak on Neuroendocrine Cancer! 

Registration is $125 per person including

  • Thursday’s Welcome Reception 
  • Breakfast, Lunch, and snacks for both Friday and Saturday
  • And keep your eyes out for some special prizes!

Registration does not include your hotel stay or travel expenses.

For more information and to buy your ticket, click here!!

*Time and Date are subject to change.

To check out some of our other speakers, click here!

Speaker Spotlight – National Conference Edition Part 10

drheidiconnolly

Heidi M. Connolly, M.D.

mayoclinic

Location

  • Minnesota

Departments

  • Cardiovascular Diseases

Education

  • Fellow – Adult Congenital Heart Disease Special Fellowship
    Mayo Graduate School of Medicine, Mayo Clinic College of Medicine
  • Fellow – Cardiovascular Diseases
    Mayo Graduate School of Medicine, Mayo Clinic College of Medicine
  • Resident – Internal Medicine
    Mayo Graduate School of Medicine, Mayo Clinic College of Medicine
  • MD
    Royal College of Surgeons in Ireland
  • Other – Undergraduate
    Hamline University

Certifications

  • Cardiovascular Diseases
  • Internal Medicine

Academic rank

  • Professor of Medicine

Professional Highlights

  • Director, Adult Congenital Heart Disease Clinic
  • Director, Congenital Heart Center

Interests

  • Adult congenital heart disease
  • Carcinoid heart disease
  • Echocardiography
  • Marfan syndrome and other aortic disorders
  • Pregnancy and heart disease

For more information on Dr. Heidi Connolly and the Mayo Clinic in Rochester, MN, please visit their website here and the US News report on her here.

You can read Dr. Connolly’s publications by clicking here.

To make an appointment, please contact:

Mayo Clinic Rochester: 200 1st Street SW, Rochester, MN 55905

Phone: (507) 284-2511 or (507) 538-3270

Dr. Connolly at the 2016 National NET Patient Conference:

Topic: Carcinoid Heart Disease: What you need to know

When: Saturday, September 24th, 2016 at 8:00AM*

SIGN UP NOW FOR THE 2016 NATIONAL NET PATIENT CONFERENCE in New Orleans, LA from September 22-24th to see Dr. Connolly and 19 other experts speak on Neuroendocrine Cancer! 

Registration is $125 per person including

  • Thursday’s Welcome Reception 
  • Breakfast, Lunch, and snacks for both Friday and Saturday
  • And keep your eyes out for some special prizes!

Registration does not include your hotel stay or travel expenses.

For more information and to buy your ticket, click here!!

*Time and Date are subject to change.

To check out some of our other speakers, click here!

Speaker Spotlight – 2016 National Conference Edition Part 9

drwoltering

Eugene A. Woltering, MD, FACS

Bio:

Eugene A. Woltering, M.D .FACS,is the James D. Rives Professor of Surgery and Neurosciences at the Louisiana State University Health Sciences Center in New Orleans. He also is the Section Chief of Surgical Endocrinology and the Director of Surgical Research at this institution. Dr. Woltering attended medical school at Ohio State University School of Medicine and completed his surgical residency at Vanderbilt University Affiliated Hospitals in Nashville, Tennessee. Dr. Woltering has also completed fellowships in surgical oncology at The OhioState University School of Medicine and the National Cancer Institute. Dr. Woltering specializes in the diagnosis and management of neuroendocrine tumors of the gastroenteropancreatic tract. His research interests include the development of radioactive drugs for the diagnosis and therapy of tumors and the development of human tissue based models that can be used to product drug activity in patients.

To make an appointment, please contact Pam Ryan, RN:

NOLANETS-New Orleans Louisiana Neuroendocrine Tumor Specialists                  200 West Esplanade, Ste. 200                                                                                        Kenner, LA 70065                                                                                                                    (504) 464-8500                                                                                                                               or toll free: (866) 91-ZEBRA

For more information about Dr. Woltering, please visit Oschner Health Center’s website here or his LSU profile here.

For more information on Dr. Gene Woltering and NOLA NETs, please visit their website here.

Dr. Woltering at the 2016 National NET Patient Conference:

Topic: Biomarkers: The Emerging Role of Pancreastatin and Neurokinin A

When: Friday, September 23th, 2016 at 9:45AM*

SIGN UP NOW FOR THE 2016 NATIONAL NET PATIENT CONFERENCE in New Orleans, LA from September 22-24th to see Dr. Woltering and 19 other experts speak on Neuroendocrine Cancer! 

Registration is $125 per person including

  • Thursday’s Welcome Reception 
  • Breakfast, Lunch, and snacks for both Friday and Saturday
  • And keep your eyes out for some special prizes!

Registration does not include your hotel stay or travel expenses.

For more information and to buy your ticket, click here!!

*Time and Date are subject to change.

To check out some of our other speakers, click here!

Speaker Spotlight – 2016 National Conference Edition Part 8

drtang

Laura H. Tang, MD, PhD

Pathologist

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Bio:

I am a pathologist who is trained in gastrointestinal surgical pathology and as a basic scientist with a focus on molecular pathophysiology of the gastrointestinal tract. My primary specialty is digestive diseases, particularly cancers of the gastrointestinal tract and the pancreas. I also specialize in gastroesophageal reflux disease (GERD) and Barrett’s esophagus, and have a special interest in gastrointestinal neuroendocrine tumors and carcinoid disease.

My investigative research involves elucidating the molecular mechanisms of cell proliferation and the regulation of malignant cell transformation, both with the goal of developing molecular techniques that will improve the early diagnosis and treatment of gastrointestinal tract cancers. I am currently involved in a multidisciplinary investigation of Barrett’s-related dysplasia and esophageal cancer. My career goals are to maintain excellence in the area of surgical pathology and diagnosis, and to improve patient care by developing strategies to speed the evolution of the field of morphologic pathology into a new era of functional and molecular pathology.

For more information on Dr. Laura Tang and Memorial Sloan Kettering Cancer Center, please visit their website here.

You can read Dr. Tang’s journal articles by clicking here.

Dr. Tang at the 2016 National NET Patient Conference:

Topic: The Histology Staging & Grading of NETs

When: Friday, September 23th, 2016 at 8:45AM*

SIGN UP NOW FOR THE 2016 NATIONAL NET PATIENT CONFERENCE in New Orleans, LA from September 22-24th to see Dr. Tang and 19 other experts speak on Neuroendocrine Cancer! 

Registration is $125 per person including

  • Thursday’s Welcome Reception 
  • Breakfast, Lunch, and snacks for both Friday and Saturday
  • And keep your eyes out for some special prizes!

Registration does not include your hotel stay or travel expenses.

For more information and to buy your ticket, click here!!

*Time and Date are subject to change.

To check out some of our other speakers, click here!

Speaker Spotlight – 2016 National Conference Edition Part 7

drmetz

David C. Metz, MD

Professor of Medicine
Division of Gastroenterology
Hospital of University of Pennsylvania
Philadelphia, PA

pennmedicine

Bio:

Dr Metz is Professor of Medicine and Associate Chief for Clinical Affairs in the Division of Gastroenterology at the University of Pennsylvania in Philadelphia, where he is director of the Acid-Peptic Disease Program and codirector of the GI Physiology Laboratory, the Swallowing Disorders Program and the Neuroendocrine Tumor Program.

He is actively involved in clinical research, patient care, and teaching of students, residents, and fellows. Dr Metz’s clinical research program is particularly active in acid-peptic conditions including hypersecretory states such as Zollinger-Ellison syndrome, Helicobacter pylori infection, nonsteroidal anti-inflammatory drug gastropathy, and gastroesophageal reflux disease. He also has particular expertise in the diagnosis and management of patients with functional and non-functional neuroendocrine tumors of the pancreas and alimentary tract. He has been a principal investigator on a number of trials evaluating upper gastrointestinal disease states. He is also active in national gastroenterology societies and was a prior member of the Liason Committee for Recertification of the American Board of Internal Medicine (American Gastroenterological Association representative) and the US Food and Drug Administration Gastrointestinal Drugs Advisory Committee. He is vice chair of the North American Neuroendocrine Tumor Society (NANETS)

Dr Metz earned his MBBCh (MD equivalent) from the University of the Witwatersrand in Johannesburg, South Africa. He moved to the United States in 1986 and pursued a residency in internal medicine at Albert Einstein Medical Center in Philadelphia. He completed a fellowship in gastroenterology in Washington, DC, in the combined Georgetown/Veterans Affairs Medical Center/National Institutes of Health (NIH) program. He remained on staff at the NIH for 2 more years as a senior staff fellow, performing basic research in pancreatic acinar cell secretion and clinical research in Zollinger-Ellison syndrome specifically.

In 1993, Dr Metz moved to Philadelphia in the role of Assistant Professor in the clinician educator track at the University of Pennsylvania. He was promoted to Associate Professor in 1998 and Full Professor in 2003.

To make an appointment, please contact:

Bonnie Bennett at (215) 349-5562

Perelman Center for Advanced Medicine                                                                        South Pavilion, 4th Floor                                                                                                        3400 Civic Center Boulevard                                                                                 Philadelphia, PA 19104                                                                                                            (800) 789-PENN (7366)

For more information on Dr. David Metz and Penn Medicine at the University of Pennsylvania, please visit their website here.

Dr. Metz at the 2016 National NET Patient Conference:

Topic: The Role of the Gastroenterologist in Diagnosing and Treating NETs

When: Friday, September 23th, 2016 at 10:15AM*

SIGN UP NOW FOR THE 2016 NATIONAL NET PATIENT CONFERENCE in New Orleans, LA from September 22-24th to see Dr. Metz and 19 other experts speak on Neuroendocrine Cancer! 

Registration is $125 per person including

  • Thursday’s Welcome Reception 
  • Breakfast, Lunch, and snacks for both Friday and Saturday
  • And keep your eyes out for some special prizes!

Registration does not include your hotel stay or travel expenses.

For more information and to buy your ticket, click here!!

*Time and Date are subject to change.

To check out some of our other speakers, click here!