Five Reasons to Attend a Neuroendocrine Cancer Patient Conference

Educational opportunities. No matter how experienced you are about handling your disease, everyone can learn. Being treated for a rare cancer can often be isolating, and without exposure to a variety of points of view, we can miss new ideas and trends that can impact our futures. The educational aspect of a conference can expose you to new treatment regimens and therapies and help you discover how to be a more productive advocate for your treatment and care.

Networking with peers. Patient conferences provide a great opportunity to network. Often patients and caregivers from different regions of the country can become valuable resources for referrals and best-practices. Avoiding your peers for whatever reason you have can actually limit you own success in fighting neuroendocrine cancer. You will find that the people who come together at a conference can help each other uncover ideas and spark inspiration when they get to know each other on a personal level.

Encounter the vendors & suppliers who provide the therapies you need. Too often people shy away from exhibitors at conferences. They fear they will have to talk to salespeople, but these industry suppliers are some of the best people for you to get to know if you want to learn more about the current direction of treatment. Discovering innovative products and services for your business is critical to your treatment and care in today’s fast-paced world. Invest time with the sponsors at the event and turn them into your friends and allies.

Position yourself as an expert. It has been suggested that well over half the requests by neuroendocrine cancer patients to their physicians for specific treatments are honored. A neuroendocrine cancer patient conference is the perfect opportunity to build your knowledge and become a better advocate for your health! You will hear directly from experts. Save your life by making sure you know enough to participate in your care so you are getting the best treatment plan possible.

Have fun. Being a neuroendocrine cancer patient or caregiver is hard work and it is stressful. All work and no play can get old fast. Patient conferences can add a layer of enjoyment to managing your disease by mixing a social aspect into your patient journey. Taking an extra day at the beginning or end of the trip to explore or visit friends in the region is also a great way to maximize the investment in travel. Never underestimate the power of a little fun mixed with some interesting people!

The internet won’t replace the conference experience. Many falsely believe that since they can now access industry information via the internet that the days of the live meeting are gone. The truth is, meetings are more important than ever. The value in meetings comes from the human-to-human connections that occur. Often people cite the serendipidous “hallway-conversations” that they have with other attendees as the most valuable parts of attending an event. While these are not on the agenda, or mentioned in the learning objectives, when two or more people begin to discuss topics on a deeper and personal level, the success of the event to those involved becomes irreplaceable. It is the people that bring the ROI to your time at a conference.

NCAN has 4 conferences scheduled for 2017. Why not make it your business to attend at least one of them?

Saturday, March 25th – NET Patient Conference – Charlotte, NC (Registration open NOW!)

Saturday, April 22nd – NET Patient Conference – Lexington, KY (Registration open NOW!)

Saturday, May 6th – NET Patient Conference – Seattle, WA (More information to come!)

Saturday, October 14th – NET Patient Conference – Iowa City, IA (More information to come!)

Don’t Miss the 2017 Charlotte NET Patient Conference!

NCAN has officially opened up registration for the 2017 Charlotte NET Patient Conference for Saturday, March 25th, 2017!

Agenda:

8 AM – 9 AM     Registration and Breakfast

9 AM – 9:10 AM     Welcome- Tricia Wahmann, NCAN

9:10 – 9:45 AM     Surgery and Related Therapies for NET Liver Metastasis- David Iannitti, MD

9:45 – 10:15 AM     NET Clinical Trials- Reza Nazemzadeh, MD

10:15 – 10:30 AM     Break

10:30 AM – 11:00 AM     Treating NETS: A Gastroenterologist’s Perspective-Matthew Eves, MD

11:00 – 11:30 AM     New Medical Treatment Options for Carcinoid / NET Cancer Patients- Brian Morse, MD

11:30 – 12:30 PM     Question and Answer

12:30 – 1:30 PM     Lunch

1:30 PM – 2:30 PM     The Significance of Patient Advocacy- Maryann Wahmann, Ronda Ayala, Judy Golz

2:30 PM – 2:45 PM     Break

2:45 PM – 3:45 PM     Networking for Patients

Meet the Speakers:

David Iannitti, MD- Surgery

Dr. Iannitti is the Chief of Hepatobiliary and Pancreatic (HBP) Surgery. In addition to clinical research in the area of surgical approaches to treat diseases of the digestive tract, he is engaged in basic research that focuses on the development and characterization of microwave ablation technology for the ablation of tumor masses. Dr. Iannitti also collaborates closely with Dr. McKillop in ongoing projects that address the fundamental pathophysiology of Hepatocellular carcinoma development and progression. Dr. Iannitti also oversees the HBP Fellows program at CMC including the research and clinical components. 

Reza Nazemzadeh MD- Medical Oncology

Dr. Nazemzadeh graduated from the University of Texas Medical School at Houston in 2000. He works in Charlotte, NC and specializes in Hematology/Oncology. Dr. Nazemzadeh is affiliated with Carolinas Medical Center.

Matthew Eves, MD- Gastroenterology

Dr. Matthew Eves is a gastroenterologist in Mobile, Alabama and is affiliated with multiple hospitals in the area, including Huntsville Hospital and Mizell Memorial Hospital. He received his medical degree from University of South Alabama College of Medicine

Brian Morse, MD- Radiology

Dr. Morse is an Assistant Member in the diagnostic Imaging section of Moffitt Cancer Center and holds a co-appointment as an Assistant Professor in the Department of Oncologic Sciences at the University of South Florida.  He received a BA in Microbiology from the University of Texas at Austin and an M.D. from the University of Texas Health Science Center at San Antonio.  He completed his radiology residency at the University of Texas Southwestern Medical Center at Dallas where he served as radiology chief-resident during his final year.  After residency, Dr. Morse completed fellowship training in cross-sectional imaging with an emphasis in body MRI at the Mayo Clinic in Scottsdale, Arizona.  Dr. Morse is a reviewer for several journals and has published multiple articles in peer-reviewed journals.  His clinical expertise includes the use of computed tomography (CT), magnetic resonance imaging (MRI), radiographs and fluoroscopy to diagnose cancer and assess treatment response, particularly of the gastrointestinal and genitourinary organs.  His research interests focus on imaging of neuroendocrine tumors.

Important information about this conference:

Where: Charlotte Marriott SouthPark – 2200 Rexford Road, Charlotte, NC 20211

Cost: $20 includes: breakfast, lunch, and breaks.

Special Rate for the hotel is available when booked BEFORE March 3rd. $129/night. You can book your room here!

Self-Parking is FREE.

To sign up for your spot at the 2017 Charlotte NET Patient Conference on Saturday, March 25th, 2017, please click here!

Call to Action: NET Cancer Awareness

Attention All Neuroendocrine/ Carcinoid Cancer Patients, Caregivers, family and friends! Help us bring Awareness to this deadly disease! This is something everyone can do!

Many of you know that November is NET Cancer Awareness Month with NET Cancer Awareness Day on November 10th.

We are asking everyone to wrap or hang zebra ribbons around your community. Trees, mail boxes, telephone poles, hang on front doors, or be creative in your neighborhood in order to help create some buzz surrounding NET Cancer.

All you need to do is get any type of Zebra ribbon. (They can be found in many stores such as Walmart, AC Moore, Michaels, or card stores) and hang them around where the general public where people would question what the Zebra ribbon is for.

NCAN is asking that you take pictures of you, and your family, friends with the ribbon and submit them via e-mail to netcanceraware@aol.com. In your email, please include that you are standing up for the Neuroendocrine Cancer community or in honor or memory of a love one. Please make sure you include the names.

NCAN will be making a video collage to be posted on Youtube, Facebook, and NCAN’s website, as well as here on NETCancerAwarenessBlog.

NCAN is working on getting some press releases out and some media coverage about this for the NET community.

If you have questions feel free to call the NCAN office at (866) 850-9555.

For more information about NET Cancer go to www.netcancerawareness.org

Please invite your family and friends to join!

Get Your Zebra On!

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#StripesforNETCancer Contest Winner!!

And the winner is…

Heather Shea-Martinez!!!

winner

 

Heather, you have won a free registration to NCAN’s 2016 National NET Patient Conference in New Orleans this upcoming September!!

This registration includes all events for the program from Thursday, September 22nd – Saturday, September 24th!

 Including

  • Thursday’s Welcome Reception 
  • Breakfast, Lunch, and snacks for both Friday and Saturday
  • And keep your eyes out for some special prizes!

Registration does not include your hotel stay or travel expenses.

For more information, click here!!

A huge THANK YOU to Heather and her family and friends for their wonderful #StripesforNETCancer photos!!

Thank you to all of our participants and to everyone who has been sending me their photos! Please keep on sending them because I’m working on some projects with them!

If you would like to register for the 2o16 National NET Patient Conference, you can do so here!! Don’t miss out!

Keep your eye out for out next CONTEST coming soon!

 

#StripesforNETCancer Contest!

Happy Friday beautiful Zebras and Co!

I have a great contest that will be going on this weekend and it starts as soon as this post goes live!

Yesterday, Snapchat released a supercool Zebra lens! With this comes an awesome opportunity for the NET community to come together and take advantage of this to spread awareness!!

So here are the details:

What do I need to do?: Take a picture of yourself using the Zebra Snapchat lens and post it to Instagram.

When does it run?: Friday, April 22nd, 2016 at 9AM EST through Sunday, April 24th, 2016 at 11:59PM EST.

How many times can I enter?: Unlimited BUT each picture must be a different picture so you can take pictures of your kids, spouse, neighbor, friend, family, whoever. Be sure if they are on Instagram, to tag them or at least give them credit for being in the photo!

To be eligible:

  1. You must tag or give credit to whom the picture is of
  2. You must tag @netcancerawarenessblog
  3. You must use the hashtags #StripesforNETCancer #NETCancer #NETCancerAwareness and #BigNETConference
  4. And you must be following @netcancerawarenessblog on Instagram

So what is the prize, you ask? You will get a free registration to the 2016 National NET Patient Conference this coming September! This is a $125 saving!!!

What if I’ve already registered?: Don’t worry, you can participate also! If you win, when we contact you, that will be taken care of!

How will you determine the winner?: I will be using a random drawing app to draw the winner.

The winner will be announced at 10:30AM EST on Monday, April 25th, 2016!

*By entering the contest, you are giving me, Tricia Wahmann-Knatz, NETCancerAwarenessBlog, and NCAN permission to use your photos in our photo database for future awareness usage.

If you would like to send us your photo to be a part of the upcoming Awareness poster but DO NOT want to be entered into this contest, please to ALL of the above EXCEPT the hashtag #BigNETConference.

I can’t wait to see you show your #StripesforNETCancer!!!

Have a great weekend!

Tricia

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P.S. Keep an eye out tomorrow morning for our next Speaker Spotlight!