At the 2016 National NET Patient Conference, Laughter is the BEST Medicine!

Looking for a few laughs on Friday night at the National NET Patient Conference?

NCAN is so excited to finally announce the Friday night social event sponsored by NCAN for the 2016 National NET Patient Conference taking place in just a few weeks! This is a great time to network and relax, taking a break from all the heavy information that will be introduced over this amazing, jam packed weekend!

Introducing Emmy Award winning writer, speaker, comedian and fellow cancer survior Steve Mazan:

stevemazan

Come enjoy a hysterically funny show- ‘Laughter is the Best Medicine’- just for attendees of the 2016 National Neuroendocrine Cancer Patient Conference, starring Emmy Award winning writer, speaker, comedian and fellow neuroendocrine cancer survivor Steve Mazan. Steve is known for his Emmy Award winning writing for The Ellen DeGeneres Show and for performing his comedy on The Late Show with David Letterman, BUT he is most well known for his award winning film, ‘Dying to Do Letterman.’ 

Steve will be hanging out with the crowd, signing autographs, and he will have some merchandise to give away! There will also be a raffle where you can win an autographed DVD of one of Steve’s best shows!

On your way to the show, from 5 pm to 6:15 pm, stop for some healthy and delicious smoothies and cookies provided by one of the conferences sponsors. These tasty treats were designed specifically with neuroendocrine cancer patients in mind. Doors to the show will open at 6 pm and light refreshments will be served. At 7, it’s time for the show, sponsored by the Neuroendocrine Cancer Awareness Network! 

It’s all happening right in the same hall as Friday’s General Session so it’s easy to get to. This is a great time to network and relax, taking a break from all the heavy information that will be introduced over this amazing, jam packed weekend!

Want to learn more about Steve? Visit SteveMazan.com or check out DyingtoDoLetterman.com for more information on Steve Mazan, his cancer journey, and to check out Dying to Do Letterman. Also, check out this Ted Talks that Steve Mazan did back in 2011: It’s Never too Late to Live your Dreams.

For more information on the 2016 National NET Patient Conference in New Orleans, LA September 22nd, 2016 to September 24th, 2016, please click here!

NCAN Bandaid

2016 LungNET Conference Video Recordings

Happy Monday, fellow Zebras!

Some of you may have seen that NCAN and The Healing NET Foundation have been slowly releasing the videos from the LungNET Conference in Denver, CO on June 11th. Here is a place where you can get all the links in one spot!

Introduction to the 2016 LungNET Conference:

Visit NCAN’s website here. HNF’s website here, and for more information on Dr. Liu, you can get that here.

Basics of Lung Neuroendocrine:

For more information on Dr. Ramirez, you can see my post introducing him, here.

Pathology for Lung Neuroendocrine

You can find more information on Dr. Ryan here.

Surgery of Lung Neuroendocrine:

You can find more information on Dr. Parker here.

Pulonary Medicine for Lung Neuroendocrine:

To find more information on Dr. Kobitary click here.

Medical Therapy for Lung Neuroendocrine:

For more information on Dr. Öberg click here.

Clinical Trials in All Neuroendocrine:

For more information on Dr. Liu, see above links to Dr. Liu’s introduction as well as The Healing NET Foundation website.

Non-Medical Management of Metastatic Disease:

For more information on Dr. Nutting, click here.

Questions and Answers Part 1

Questions and Answers Part 2

NCAN would like to thank all of their speakers, sponsors, and attendees for another successful event!

Want to experience an NCAN NET Patient Conference yourself? Please keep up with NCAN by adding yourself to their mailing list by going to their website and be sure to “like” NCAN on Facebook! Also, keep your eyes out here, on NET Cancer Awareness Blog for some awesome announcements for 2017 coming soon!!

Upcoming: The 2016 National NET Patient Conference in New Orleans, LA!! If you haven’t already, check out that information here because time to register is running out!!

Survey on Cancer Education for Children

How much is too much (or not enough) to tell children about a parent’s cancer diagnosis?

Cancer education for children is something I am extremely passionate about. I have very strong views on this matter, having lived through this myself. I get asked all the time about what a parent should say or how much to say to their children when it comes time for the “Big C” discussion. On the other hand, since about the age of 12, I have also heard from hundreds of kids, like myself, who are on the receiving side of the information, who feel they haven’t been given enough.

This is something that I have been thinking about a lot the last few months and have tailored my ideas moving forward specifically for children of parents with NET Cancer. (Keep your eyes peeled this fall!)

I have been approached by CancerEd: a team of faculty and students from Calvin College in Grand Rapids, MI. CancerEd is working to create free content to be used teach K-12 students about cancer in a scientifically accurate, yet sensitive manner with materials that are age-appropriate. They already have a few of these lesson plans that can be viewed on their website CancerEd.org.

cancered

In efforts to keep developing quality content and to tailor these curriculums, they have reached out with a survey to better understand the conversation and tools being used (or needed) by parents (or caregivers) who have cancer (or had) in order to facilitate these highly important and difficult discussions.

Please take the time to fill out this anonymous survey and please pass this survey on to anyone who can participate in order to gather this extremely important information!

CancerEd Parent Survey

A huge thank you to anyone who takes the time to fill this survey!

If you have any questions or concerns reguarding this survey, or if you would like a PDF version to fill out or pass on to others, please reach out to me at tricia@netcancerawareness.org or leave me comments here!

Thanks again!

Tricia Wahmann-Knatz

Speaker Spotlight – National Conference Edition Part 11

drhowe

James R. Howe V, MD

uofiowaclinic

Bio:

Director, Division of Surgical Oncology and Endocrine Surgery

Co-Director, Neuroendocrine Cancer Clinic

Professor of Surgery  – Surgical Oncology and Endocrine Surgery

Education:

MD, University of Vermont College of Medicine

Fellowship, Surgical Research Fellow, Washington University

Residency, General Surgery, Barnes Hospital

Fellowship, Clinical, Surgical Oncology, Memorial Sloan-Kettering Center

Licensure and Certifications:

Iowa Medical License, Iowa Board of Medicine

Certified, Advanced Trauma Life Support

Board Certified, General Surgery, American Board of Surgery

Qualifying Examination, American Board of Surgery

Recertification Examination, American Board of Surgery

Research Summary:

I am a Surgical Oncologist and Endocrine Surgeon who specializes in taking care of patients with cancers of the pancreas, liver, GI tract, soft tissue sarcoma, melanoma, thyroid, parathyroid, and adrenal glands; I am co-director of the neuroendocrine cancer clinic, Division Director of Surgical Oncology and Endocrine Surgery, and Professor of Surgery at the University of Iowa. My area of research expertise is in Familial Cancer Syndromes, genetic linkage, gene discovery, and gene expression studies. My postdoctoral training at Washington University under Helen Donis-Keller, Ph.D. and Samuel Wells, M.D., was directed at the identification of the gene for Multiple Endocrine Neoplasia Type 2. As a faculty member, my focus has been the genetics of Juvenile Polyposis, which led to the discovery of the 2 predisposing genes. More recently, I have developed a large clinical practice and research interest in the genetics of neuroendocrine tumors (NETs). Our current research focus is the study of gene expression profiles in pancreatic and small bowel NETs to identify new targets for imaging and treatment, and collection of families to search for predisposing genes.

For more information on Dr. James Howe and the University of Iowa Hospitals and Clinics, please visit their website here. You can also view Dr. Howe’s academic profile, here.

You can read Dr. Howe’s publications by clicking here.

For information on the Neuroendocrine Cancer Program at the University of Iowa Hospitals and Clinics, you can find that here.

To make an appointment, please contact:

University of Iowa Hospitals and Clinics: 200 Hawkins Drive, Iowa City, IA 52242

Phone: (800) 777-8442 or (319) 356-1727

Dr. Howe at the 2016 National NET Patient Conference:

Topic: Hepatic Resection vs Liver Directed Therapy

When: Saturday, September 24th, 2016 at 8:30AM*

SIGN UP NOW FOR THE 2016 NATIONAL NET PATIENT CONFERENCE in New Orleans, LA from September 22-24th to see Dr. Howe and 19 other experts speak on Neuroendocrine Cancer! 

Registration is $125 per person including

  • Thursday’s Welcome Reception 
  • Breakfast, Lunch, and snacks for both Friday and Saturday
  • And keep your eyes out for some special prizes!

Registration does not include your hotel stay or travel expenses.

For more information and to buy your ticket, click here!!

*Time and Date are subject to change.

To check out some of our other speakers, click here!

Speaker Spotlight – National Conference Edition Part 10

drheidiconnolly

Heidi M. Connolly, M.D.

mayoclinic

Location

  • Minnesota

Departments

  • Cardiovascular Diseases

Education

  • Fellow – Adult Congenital Heart Disease Special Fellowship
    Mayo Graduate School of Medicine, Mayo Clinic College of Medicine
  • Fellow – Cardiovascular Diseases
    Mayo Graduate School of Medicine, Mayo Clinic College of Medicine
  • Resident – Internal Medicine
    Mayo Graduate School of Medicine, Mayo Clinic College of Medicine
  • MD
    Royal College of Surgeons in Ireland
  • Other – Undergraduate
    Hamline University

Certifications

  • Cardiovascular Diseases
  • Internal Medicine

Academic rank

  • Professor of Medicine

Professional Highlights

  • Director, Adult Congenital Heart Disease Clinic
  • Director, Congenital Heart Center

Interests

  • Adult congenital heart disease
  • Carcinoid heart disease
  • Echocardiography
  • Marfan syndrome and other aortic disorders
  • Pregnancy and heart disease

For more information on Dr. Heidi Connolly and the Mayo Clinic in Rochester, MN, please visit their website here and the US News report on her here.

You can read Dr. Connolly’s publications by clicking here.

To make an appointment, please contact:

Mayo Clinic Rochester: 200 1st Street SW, Rochester, MN 55905

Phone: (507) 284-2511 or (507) 538-3270

Dr. Connolly at the 2016 National NET Patient Conference:

Topic: Carcinoid Heart Disease: What you need to know

When: Saturday, September 24th, 2016 at 8:00AM*

SIGN UP NOW FOR THE 2016 NATIONAL NET PATIENT CONFERENCE in New Orleans, LA from September 22-24th to see Dr. Connolly and 19 other experts speak on Neuroendocrine Cancer! 

Registration is $125 per person including

  • Thursday’s Welcome Reception 
  • Breakfast, Lunch, and snacks for both Friday and Saturday
  • And keep your eyes out for some special prizes!

Registration does not include your hotel stay or travel expenses.

For more information and to buy your ticket, click here!!

*Time and Date are subject to change.

To check out some of our other speakers, click here!

Speaker Spotlight – 2016 National Conference Edition Part 8

drtang

Laura H. Tang, MD, PhD

Pathologist

sloanketteringcc

Bio:

I am a pathologist who is trained in gastrointestinal surgical pathology and as a basic scientist with a focus on molecular pathophysiology of the gastrointestinal tract. My primary specialty is digestive diseases, particularly cancers of the gastrointestinal tract and the pancreas. I also specialize in gastroesophageal reflux disease (GERD) and Barrett’s esophagus, and have a special interest in gastrointestinal neuroendocrine tumors and carcinoid disease.

My investigative research involves elucidating the molecular mechanisms of cell proliferation and the regulation of malignant cell transformation, both with the goal of developing molecular techniques that will improve the early diagnosis and treatment of gastrointestinal tract cancers. I am currently involved in a multidisciplinary investigation of Barrett’s-related dysplasia and esophageal cancer. My career goals are to maintain excellence in the area of surgical pathology and diagnosis, and to improve patient care by developing strategies to speed the evolution of the field of morphologic pathology into a new era of functional and molecular pathology.

For more information on Dr. Laura Tang and Memorial Sloan Kettering Cancer Center, please visit their website here.

You can read Dr. Tang’s journal articles by clicking here.

Dr. Tang at the 2016 National NET Patient Conference:

Topic: The Histology Staging & Grading of NETs

When: Friday, September 23th, 2016 at 8:45AM*

SIGN UP NOW FOR THE 2016 NATIONAL NET PATIENT CONFERENCE in New Orleans, LA from September 22-24th to see Dr. Tang and 19 other experts speak on Neuroendocrine Cancer! 

Registration is $125 per person including

  • Thursday’s Welcome Reception 
  • Breakfast, Lunch, and snacks for both Friday and Saturday
  • And keep your eyes out for some special prizes!

Registration does not include your hotel stay or travel expenses.

For more information and to buy your ticket, click here!!

*Time and Date are subject to change.

To check out some of our other speakers, click here!

LungNET Conference 2016-Registration is OPEN!

Hey guys,

I hope everyone is off to a great start this week!

We at NCAN, along with The Healing NET Foundation and U.S. Oncology, are so super excited to announce the upcoming LungNET Conference in Denver, CO, featuring 8 world renowned doctors presenting the information you need, on Saturday, June 11th, 2016! The conference will be at the Denver Marriott City Center from 8AM to 5PM. Registration is $25 per person and included in this fee is breakfast, lunch and snacks.

Take a look at this amazing line up:

8:30 – 8:45:  WELCOME & Introductions to NCAN and HNF – Dr. Eric Liu, Cindy Lovelace, and Maryann Wahmann

8:45 – 9:30:  Basics of Lung Neuroendocrine – Dr. Robert Ramirez

9:30 – 10:00:  Diagnostics of Lung Neuroendocrine –Dr.  Craig Kornbluth

10:00 – 10:20:  Break

10:20 – 10:50:  Pathology for Lung Neuroendocrine –Dr.  Maggie Ryan

10:50 – 11:30:  Surgery for Lung Neuroendocrine – Dr. Richard Parker

11:30 – 12:00  Pulmonary Medicine for Lung Neuroendocrine – Dr. Majd Kobitary

12:00 – 1:00:  Lunch

1:00 – 2:00:  Medical Therapy Lung Neuroendocrine: Dr.  Kjell Oberg

2:00 – 2:30:  Clinical Trials in ALL Neuroendocrine:  Dr. Allen Cohn

2:30 – 3:00:  Non-Medical Management of Metastatic Disease:  Dr. Charlie Nutting

3:00 – 4:00:  Questions and Answers

Space is very limited so be sure to register here!

The address for the Denver Marriott Center City is 1701 California Street, Denver, CO 80202. We have a room block set up for $139 per night. This room rate is available Thursday to Saturday night. To book a room, you can do so by clicking here or contact the hotel via phone: (303) 297-1300.

Dr. Liu will have extended clinic hours for Wednesday, June 8th through Friday, June 10th. Please book these ASAP as they are also extremely limited and WILL fill up! If you would like to make an appointment, please call (303) 388-4876. If you are coming in before Thursday, ask for the hotel information for their discount for your appointment.

Again, REGISTRATION IS OPEN!

NCAN BandaidHealingNET (3)

We can’t wait to see you there!

Best,

Tricia Wahmann-Knatz