Introduction to PRRT

What is PRRT? Peptide Receptor Radionuclide Therapy (PRRT) is a molecular targeted therapy used to treat the NET tumors such as gastroenteropancreatic NET tumors (Carcinoid/stomach, intestines, and pancreas), small cell carcinoma of the lung, and other tissues of the neuroendocrine system, such as pheochromocytoma (a rare tumor on the adrenal glands). The goals of PRRT are to treat symptoms, to slow or stop the progression of NET tumors, and improve overall quality of life. Candidates for PRRT are patients who have advanced NET tumors (mainly grades 1 and 2), are not candidates for surgery, and patients who have not had symptoms respond to other treatments.

So, how does it work? Tumor cells have peptide receptors on located on the outside. In NET tumors, this receptor is called the somatostatin receptor. A lab-created somatostatin protein (octreotide) is binded with a small amount of lutetium (a radioactive particle). When injected into the bloodstream, this mixture binds to the tumor via the somatostatin receptor and treats the tumor from the inside, delivering a high dose of radiation to the tumor.

*Please remember to discuss all medical options with a NET specialist. This is so important in finding the correct treatment plan for you.*

Here are some sources to learn more about PRRT:

www.prrt-treatment.com

www.snmmi.org

www.prrtinfo.org

 

Best,

Tricia Wahmann-Knatz

Big NET Conference – 2016 National NET Patient Conference

Happy Spring Zebra family!

I hope you are having a great start to 2016 and that you are as excited as we are about the amazing events taking place this year! You’ve probably seen the great agenda for the 2016 National Conference in New Orleans, LA in September! We have been super busy confirming our schedule of speakers and getting preparations moving now that we are officially just 6 short months out! This is the first of a series of blogs that I will be posting to give a bit more insight into the process as well as to share the benefits you will get by signing up for this awesome event. For those of you who are new to the NET Cancer community, the National Conference is NCAN’s largest event. These information packed weekends happen every other September and provide NET cancer patients access to 20+ NET specialists from all around the country. Where else can you go to share the latest and greatest updates in 2 and a half days?! And don’t forget- you’re right on the trolley line so you can spend some time soaking up the good food and fun in New Orleans (more on that later, I promise.)

Not only will you have the opportunity to listen to and speak with these specialists during this weekend, you will also a wonderful chance to network with 500+ NET Cancer patients and their caregivers from across the country as well. We all know how great it is to finally connect with those who understand what we experience. This year, there’s a new system, so patients who choose to participate can identify each other by primary site location to aide in the networking process. We are so excited to see how this new system helps and get your feedback on it.

Here’s the full story about this year’s National Conference: It is in New Orleans, LA from September 22nd, 2016 to September 24th at the Hyatt Regency, 601 Loyola Avenue, right next to the Superdome. Registration fee for the 2 ½ day event is just $125 per person and that includes breakfast, lunch, and snacks for Friday and Saturday as well as a free reception on Thursday night. Also included are your event materials- and be sure to watch out for some fun giveaways! Hotel accommodations aren’t included in this price and need to be booked separately (I will leave the link below.) It costs $149 per night (Thursday, Friday, and Saturday) for a double occupancy room and the Hyatt will honor that special rate for two nights prior and two nights following for those who would like to extend their stay. To get our rate, you must book BY August 22nd, 2016. After this date, prices will be at the discretion of the Hyatt and what their rack room rate at the time is.

Please, please, please be sure to register as early as possible because as the date gets closer, we cannot guarantee open spots and cannot guarantee open rooms at the hotel and this conference is one that you don’t want to miss!

You can find registration information, including the itinerary here: http://www.classy.org/BigNETConference

Hotel accommodations can be made here: https://resweb.passkey.com/go/natlCNtumorpatientconference 

Be sure to keep an eye out for my next blog and if you have any questions, please don’t hesitate to send me an email at tricia@netcancerawareness.org or leave me a message on here!

The countdown is on! See you soon…

Until next time,

Tricia Wahmann-Knatz

Welcome to the new NET Cancer Awareness Blog!

Welcome to my new blog!

Here I will be posting content regarding all things Neuroendocrine Cancer related!

Keep an eye out for the newest information, patient stories, and insight into NCAN’s events!!

Best,

Tricia Wahmann-Knatz

P.S. Be sure to check out the Neuroendocrine Cancer Awareness Network (NCAN) site here!