Help Get NET Cancer Awareness BLOOMING This Spring!

Help us, the Neuroendocrine Cancer Awareness Network (NCAN), get NET Cancer Awareness BLOOMING this spring by purchasing beautiful flowers for your garden!

NCAN is doing a flower fundraiser this month to get awareness for NET Cancer blooming this spring!

How you can help: Visit NCAN’s fundraising site here and purchase blubs and seeds of your favorite flowers! Then, you will recieve your flowers and NCAN will recieve a whopping 50% profit from your purchase!

How it works: This campaign is running today (March 1st, 2017) through April 30th, 2017. You can place your order beginning now!

Please help us reach our goal of $2500 this spring so NCAN can continue the amazing and tireless work they do throughout the whole year! Remember once you make your purchase, be sure to send the campaign link on to friends and family, as well as sharing on social media such as Facebook!

We thank you for your support and for helping us BLOOM awareness for NET Cancer! Happy shopping and HAPPY SPRING!

Five Reasons to Attend a Neuroendocrine Cancer Patient Conference

Educational opportunities. No matter how experienced you are about handling your disease, everyone can learn. Being treated for a rare cancer can often be isolating, and without exposure to a variety of points of view, we can miss new ideas and trends that can impact our futures. The educational aspect of a conference can expose you to new treatment regimens and therapies and help you discover how to be a more productive advocate for your treatment and care.

Networking with peers. Patient conferences provide a great opportunity to network. Often patients and caregivers from different regions of the country can become valuable resources for referrals and best-practices. Avoiding your peers for whatever reason you have can actually limit you own success in fighting neuroendocrine cancer. You will find that the people who come together at a conference can help each other uncover ideas and spark inspiration when they get to know each other on a personal level.

Encounter the vendors & suppliers who provide the therapies you need. Too often people shy away from exhibitors at conferences. They fear they will have to talk to salespeople, but these industry suppliers are some of the best people for you to get to know if you want to learn more about the current direction of treatment. Discovering innovative products and services for your business is critical to your treatment and care in today’s fast-paced world. Invest time with the sponsors at the event and turn them into your friends and allies.

Position yourself as an expert. It has been suggested that well over half the requests by neuroendocrine cancer patients to their physicians for specific treatments are honored. A neuroendocrine cancer patient conference is the perfect opportunity to build your knowledge and become a better advocate for your health! You will hear directly from experts. Save your life by making sure you know enough to participate in your care so you are getting the best treatment plan possible.

Have fun. Being a neuroendocrine cancer patient or caregiver is hard work and it is stressful. All work and no play can get old fast. Patient conferences can add a layer of enjoyment to managing your disease by mixing a social aspect into your patient journey. Taking an extra day at the beginning or end of the trip to explore or visit friends in the region is also a great way to maximize the investment in travel. Never underestimate the power of a little fun mixed with some interesting people!

The internet won’t replace the conference experience. Many falsely believe that since they can now access industry information via the internet that the days of the live meeting are gone. The truth is, meetings are more important than ever. The value in meetings comes from the human-to-human connections that occur. Often people cite the serendipidous “hallway-conversations” that they have with other attendees as the most valuable parts of attending an event. While these are not on the agenda, or mentioned in the learning objectives, when two or more people begin to discuss topics on a deeper and personal level, the success of the event to those involved becomes irreplaceable. It is the people that bring the ROI to your time at a conference.

NCAN has 4 conferences scheduled for 2017. Why not make it your business to attend at least one of them?

Saturday, March 25th – NET Patient Conference – Charlotte, NC (Registration open NOW!)

Saturday, April 22nd – NET Patient Conference – Lexington, KY (Registration open NOW!)

Saturday, May 6th – NET Patient Conference – Seattle, WA (More information to come!)

Saturday, October 14th – NET Patient Conference – Iowa City, IA (More information to come!)

NCAN’s 2017 Kentucky Neuroendocrine Cancer Patient Conference

Registration is open for the 2017 Kentucky Neuroendocrine Cancer Patient Conference & support group meeting on April 22nd, 2017 in Lexington, KY!

Date & Time: Saturday, April 22nd, 2017 from 8AM-5PM

Where: Griffon Gate Marriott Resort & Spa – 1800 Newtown Pike, Lexington, KY 40511

Price: $20 per person – includes breakfast, lunch, & snacks

Agenda:

8:00 am – 8:30 am     Registration and Breakfast

8:30 am – 8:45 am     Welcome By: Robert Wahmann          

9:00 am – 9:45 am     Controlling Symptoms of Hormone Hypersecretion By: Lowell Anthony, M.D.

 9:45 am – 10:15 am     Improvements in NET Imaging By: Riham El Khouli, M.D.

 10:15 am – 11:00 am     What is PRRT?  Results of the Randomized Phase III Clinical Trial By: Larry Kvols, M.D.

 11:00 am – 11:15 am     Break

 11:15 am – 11:45 am     Clinical Trials in NET  By: Aman Chauhan, M.D.

 11:45 am – 12:30 pm     Questions and Answers

 12:30 pm – 1:30 pm     Lunch

 1:30 pm – 2:30 pm     Patient Experiences

 2:30 pm – 4:00 pm     Support Group Session

For more information and to by YOUR ticket to the 2017 Kentucky Neuroendocrine Cancer Patient Conference on Saturday, April 22nd, click HERE!

Produced by: NCAN Bandaid

NCAN’s 13th Annual ‘Celebration of Life’ Gala and the ‘Above and Beyond’ Award Honoree

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Saturday, November 12th, 2016 was NCAN’s 13th Annual ‘Celebration of Life’ Gala in Bethpage, NY. Held at The Sterling, it was a beautiful evening of dancing, raffles, laughs, and good food!

The Gala is always one of my favorite fundraisers because it really is a celebration. We take the time to not only focus on the cause of NET Cancer, its awareness and fundraising but taking a moment to really enjoy and celebrate time with family and friends.

Every year at the ‘Celebration of Life’ Gala, NCAN takes the opportunity to honor someone who is invaluable to the NET community by presenting the ‘Above and Beyond’ award. Past recipients include Dr. Hal Gerstein, also honoring Dr. Gene Woltering and Dr. Tom O’Dorisio. This year, NCAN has honored Dr. Edward Wolin who is very well known throughout the community for his commitment to NET Cancer and his patients.

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As Director of the Neuroendocrine Tumor Program at Montefiore Einstein Center for Cancer Care, Dr. Wolin brings a robust research program to Montefiore, including multiple clinical trials. His research efforts focus on finding treatments which are more effective and less toxic, including m-TOR inhibitors, targeted radiation including PRRT, anti-angiogenic drugs, novel targeted biologic anti-cancer treatments, and targeted treatment of liver metastases. Dr. Wolin’s research is also directed at development of new imaging and diagnostic procedures for carcinoid/neuroendocrine tumors.

Dr. Wolin is an internationally recognized Neuroendocrine Medical Oncologist. Patients from all over the United States and abroad come to see him for access to personalized care and the latest diagnostic and therapy programs.

Dr. Wolin was previously the Director of Neuroendocrine and GI Oncology Program and the Director of Clinical Research at the University of Kentucky Medical Center.  For the preceding 26 years, he held key positions at Cedars–Sinai Medical Center in Los Angeles, where he founded and directed of one of the largest and most productive Carcinoid and Neuroendocrine Tumor Programs in the country. As you can see, Ed Wolin is one of the foremost experts and best friends that neuroendocrine cancer patients have! For more information on how to reach Dr. Wolin, you can check out a brief profile on him from a previous post here.

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‘Above and Beyond’ Award Honoree – Dr. Ed Wolin and his wife, Susan.

 

Overall, it was a very successful night for NCAN and the NET community. Take a look here at some of NCAN’s wonderful prizes, the big winners of the TV, and one of the delicious cakes!

For more information on how YOU can get involved with NCAN’s 14th Annual ‘Celebration of Life’ Gala on November 11th, 2017, keep your eyes out here and be sure to watch out at NETCANCERAWARENESS.ORG for details! For help in hosting your own fundraising event for NET Cancer near YOU, send me a message here and I’d be happy to assist you.

NCAN would really love to thank all of the volunteers, donors, attendees, and sponsors for all of their time and support! Without you, events like this amazing night would not be possible!

NCAN’s 13th Annual ‘Celebration of Life’ Gala was sponsored by:

NET Cancer Day and Other Exciting News

Happy NET Cancer Day, Zebras and Co!

I hope everyone is ready to get out and spread awarenesss of NET Cancer all day.

NCAN has been busily preparing for today:

I’m so happy to announce NCAN’s NEW website launch today! Be sure to take a look right here to check it out!

Also, to celebrate NET Cancer Day, NCAN has released the recordings from the 2016 NATIONAL CONFERENCE from NOLA this past September! Be sure to check these out as they are only FREE through NOVEMBER 30th! Be sure to keep an eye out for new programs from NCAN due out THIS DECEMBER! To take a look at the 2016 NATIONAL NET PATIENT CONFERENCE, please visit HERE!

In celebration for NET Cancer Day and due to the large volume of photos and requests for more time to submit, NCAN will be taking your ZEBRA RIBBON and NET Cancer Day photos through November 13th. Please submit all and any photos of you celebrating today to netcanceraware@aol.com. This video will be released on or about November 15th!

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LET’S PUT AN END TO NET CANCER! GET YOUR ZEBRA ON!

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Call to Action: NET Cancer Awareness

Attention All Neuroendocrine/ Carcinoid Cancer Patients, Caregivers, family and friends! Help us bring Awareness to this deadly disease! This is something everyone can do!

Many of you know that November is NET Cancer Awareness Month with NET Cancer Awareness Day on November 10th.

We are asking everyone to wrap or hang zebra ribbons around your community. Trees, mail boxes, telephone poles, hang on front doors, or be creative in your neighborhood in order to help create some buzz surrounding NET Cancer.

All you need to do is get any type of Zebra ribbon. (They can be found in many stores such as Walmart, AC Moore, Michaels, or card stores) and hang them around where the general public where people would question what the Zebra ribbon is for.

NCAN is asking that you take pictures of you, and your family, friends with the ribbon and submit them via e-mail to netcanceraware@aol.com. In your email, please include that you are standing up for the Neuroendocrine Cancer community or in honor or memory of a love one. Please make sure you include the names.

NCAN will be making a video collage to be posted on Youtube, Facebook, and NCAN’s website, as well as here on NETCancerAwarenessBlog.

NCAN is working on getting some press releases out and some media coverage about this for the NET community.

If you have questions feel free to call the NCAN office at (866) 850-9555.

For more information about NET Cancer go to www.netcancerawareness.org

Please invite your family and friends to join!

Get Your Zebra On!

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