The Speaker Spotlight – 2016 National Conference Edition Part 5

O'Dorisio

Thomas O’Dorisio, MD

Professor of Medicine, Director of the Neuroendocrine Tumor Clinics Program

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Bio:

Dr. Thomas O’Dorisio is Professor of Medicine and Director of the Neuroendocrine Tumor Clinics Program in the Holden Comprehensive Cancer Center at the University of Iowa.   Currently 1700 patients with carcinoid and familial/sporadic neuroendocrine tumors in both children and adults are registered via an IRB approved consent form.  With Co-directors Dr. James R. Howe (Endocrine surgeon) and Dr. M. Sue O’Dorisio (Pediatric Oncology), there are seven dedicated multi-disciplinary neuroendocrine tumor clinics weekly that include a neuroendocrine tumor clinic for the Veterans Administration Hospital.  Multi- diagnostic and therapeutic modalities for these patients include the highly sensitive and specific 68-Gallium – DOTATOC PET scan.  We are currently analyzing the safety and efficacy data of 200 subjects who have had this scan.  Therapeutic advances include the registration trial of LU-177 –DOTA-Octretoate therapy, a multi-international institution protocol for progressive midgut carcinoid tumors.  We anticipate the first peptide receptor radio-nuclide therapy (PRRNT) Phase II trial in the United States with Y90-DOTA-(tyr)-Octreotide within the next two months.  We see between 16 and 24 new neuroendocrine patients monthly, and have 900-1200 neuroendocrine patient visits per year. Our Clinical-Clinical Research Center is modeled after the 21 or so European NET Centers of Excellence, dedicated to this rare cancer with a prevalence in the United States of about 110,000 patients and an incidence since 1989 that has risen by 500%.

To see his official University of Iowa Heath Care video profile, please click here.

Education:

BS, Regis College, Denver, Colorado

MS, Anatomy, Creighton University, Omaha, Nebraska

MD, Creighton University, Omaha, Nebraska

Internship, Internal Medicine, Creighton University

Residency, Internal Medicine, The Ohio State University, Columbus, Ohio

Fellowship, Endocrinology, The Ohio State University, Columbus, Ohio

Licensure and Certifications:

Medical License, Iowa Board of Medicine

Certification, The College of American Pathologists (CAP) Ohio

Certification of Accreditation, Department of Health & Human Services Health Care Financing Administration (HCFA) CLIA Laboratory

Certification, American Board of Internal Medicine

To make an appointment as a NEW patient, please call:

The Holden Comprehensive Cancer Center at the University of Iowa                        (319) 356-4200 Option #3, Ask for Molly Becker

University of Iowa Hospitals and Clinics                                                                       200 Hawkins Drive                                                                                                                    Iowa City, IA 52242                                                                                                                 (800) 777-8442

Dr. O’Dorisio at the 2016 National NET Patient Conference:

Topic: PRRT Trials in America: What’s New?

When: Friday, September 23rd, 2016 at 1PM*

Be sure not to miss Dr. O’Dorisio speak! And don’t miss him on our panel answering your questions!!

For more information on Dr. O’Dorisio and the Holden Comprehensive Cancer Center at the University of Iowa, please visit their website here.

SIGN UP NOW FOR THE 2016 NATIONAL NET PATIENT CONFERENCE in New Orleans, LA from September 22-24th to see Dr. O’Dorisio and 19 other experts speak on Neuroendocrine Cancer! 

Registration is $125 per person including

  • Thursday’s Welcome Reception 
  • Breakfast, Lunch, and snacks for both Friday and Saturday
  • And keep your eyes out for some special prizes!

Registration does not include your hotel stay or travel expenses.

For more information and to buy your ticket, click here!!

*Time and Date are subject to change.

The Speaker Spotlight – 2016 National Conference Edition Part 4

Campeau

Richard J. Campeau, MD, FACNM

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Bio:

Dr. Richard Campeau is a Clinical Professor of Radiology (Nuclear Medicine) and Internal Medicine (Cardiology) at LSU and Tulane University Health Sciences Centers. Dr. Campeau attended Medical School at LSU School of Medicine. He then completed his internship and residency at Tulane University Health Sciences Centers followed by a fellowship in Nuclear Medicine at Johns Hopkins Hospital in Maryland. Currently, Dr. Campeau is the immediate past President (2007-2008) of the American College of Nuclear Medicine, and is a past President of the Southwest Chapter, Society of Nuclear Medicine. 

Dr. Campeau specializes in I-131 MIBG treatment.

To make an appointment, please contact Pam Ryan, RN:

NOLANETS-New Orleans Louisiana Neuroendocrine Tumor Specialists                  200 West Esplanade, Ste. 200                                                                                        Kenner, LA 70065                                                                                                                    (504) 464-8500                                                                                                                               or toll free: (866) 91-ZEBRA

For more information on the NOLANETS Group and Dr. Richard Campeau, please visit their website here.

Dr. Campeau at the 2016 National NET Patient Conference:

Topic: I-131 MIBG Therapy: Results of our First 100 Cases

When: Friday, September 23rd, 2016 at 1:30PM*

SIGN UP NOW FOR THE 2016 NATIONAL NET PATIENT CONFERENCE in New Orleans, LA from September 22-24th to see Dr. Campeau and 19 other experts speak on Neuroendocrine Cancer! 

Registration is $125 per person including

  • Thursday’s Welcome Reception 
  • Breakfast, Lunch, and snacks for both Friday and Saturday
  • And keep your eyes out for some special prizes!

Registration does not include your hotel stay or travel expenses.

For more information and to buy your ticket, click here!!

*Time and Date are subject to change.

#StripesforNETCancer Contest Winner!!

And the winner is…

Heather Shea-Martinez!!!

winner

 

Heather, you have won a free registration to NCAN’s 2016 National NET Patient Conference in New Orleans this upcoming September!!

This registration includes all events for the program from Thursday, September 22nd – Saturday, September 24th!

 Including

  • Thursday’s Welcome Reception 
  • Breakfast, Lunch, and snacks for both Friday and Saturday
  • And keep your eyes out for some special prizes!

Registration does not include your hotel stay or travel expenses.

For more information, click here!!

A huge THANK YOU to Heather and her family and friends for their wonderful #StripesforNETCancer photos!!

Thank you to all of our participants and to everyone who has been sending me their photos! Please keep on sending them because I’m working on some projects with them!

If you would like to register for the 2o16 National NET Patient Conference, you can do so here!! Don’t miss out!

Keep your eye out for out next CONTEST coming soon!

 

The Speaker Spotlight – 2016 National Conference Edition Part 3

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Hal Gerstein, MD

Medical Director, Medical Oncology, Hematology and Immunology, Cancer Institute of Long Island

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Bio:

Dr. Hal Gerstein was a member of the exclusive Biomedical Research Program at the Rensselaer Polytechnic Institute in Troy, NY and the Albany Medical College in Albany, NY where he earned both a Bachelor of Science degree and a Doctor of Medicine degree in 1978 after six years of study. While earning his degree, Dr. Gerstein was awarded the Mosby Award for Outstanding Research in the field of virology. He then successfully completed an internal medicine residency as well as a medical oncology and hematology fellowship at the North Shore University Hospital and Memorial Sloan-Kettering Hospital from 1978 through 1984. Dr. Gerstein is board-certified in both  Internal Medicine and Medical Oncology by the American Board of Internal Medicine.

Dr. Gerstein is currently a Senior Attending Physician on the staff of both the North Shore University Hospital in Manhasset and the Long Island Jewish Hospital in New Hyde Park. He has held teaching positions at the NYU School of Medicine and the Cornell School of Medicine, and is currently the medical advisor to the Neuroendocrine Cancer Awareness Network.  Dr. Gerstein has participated in over twenty research projects in the field of medical oncology as a principle investigator and has published several papers in nationally recognized journals. He brings over 30 years of clinical expertise to his patients.

To make an appointment, please call:

Cancer Institute of Long Island
225 Community Drive, Suite 160                                                                                         Great Neck, NY 11021                                                                                                               516-482-4790

Dr. Gerstein at the 2016 National NET Patient Conference:

Topic: Poorly Differentiated & Undifferentiated NETs: What’s our approach to these cases?

When: Friday, September 23rd, 2016 at 3:30PM*

Be sure not to miss Dr. Gerstein speak! And don’t miss him on our panel answering your questions!!

For more information on Dr. Gerstein and the Cancer Institute of Long Island, please visit their website here.

SIGN UP NOW FOR THE 2016 NATIONAL NET PATIENT CONFERENCE in New Orleans, LA from September 22-24th to see Dr. Gerstein and 19 other experts speak on Neuroendocrine Cancer! 

Registration is $125 per person including

  • Thursday’s Welcome Reception 
  • Breakfast, Lunch, and snacks for both Friday and Saturday
  • And keep your eyes out for some special prizes!

Registration does not include your hotel stay or travel expenses.

For more information and to buy your ticket, click here!!

*Time and Date are subject to change.

Be sure to check out our Speaker Spotlight on Dr. Ed Wolin and Dr. Robert Ramirez!

#StripesforNETCancer Contest!

Happy Friday beautiful Zebras and Co!

I have a great contest that will be going on this weekend and it starts as soon as this post goes live!

Yesterday, Snapchat released a supercool Zebra lens! With this comes an awesome opportunity for the NET community to come together and take advantage of this to spread awareness!!

So here are the details:

What do I need to do?: Take a picture of yourself using the Zebra Snapchat lens and post it to Instagram.

When does it run?: Friday, April 22nd, 2016 at 9AM EST through Sunday, April 24th, 2016 at 11:59PM EST.

How many times can I enter?: Unlimited BUT each picture must be a different picture so you can take pictures of your kids, spouse, neighbor, friend, family, whoever. Be sure if they are on Instagram, to tag them or at least give them credit for being in the photo!

To be eligible:

  1. You must tag or give credit to whom the picture is of
  2. You must tag @netcancerawarenessblog
  3. You must use the hashtags #StripesforNETCancer #NETCancer #NETCancerAwareness and #BigNETConference
  4. And you must be following @netcancerawarenessblog on Instagram

So what is the prize, you ask? You will get a free registration to the 2016 National NET Patient Conference this coming September! This is a $125 saving!!!

What if I’ve already registered?: Don’t worry, you can participate also! If you win, when we contact you, that will be taken care of!

How will you determine the winner?: I will be using a random drawing app to draw the winner.

The winner will be announced at 10:30AM EST on Monday, April 25th, 2016!

*By entering the contest, you are giving me, Tricia Wahmann-Knatz, NETCancerAwarenessBlog, and NCAN permission to use your photos in our photo database for future awareness usage.

If you would like to send us your photo to be a part of the upcoming Awareness poster but DO NOT want to be entered into this contest, please to ALL of the above EXCEPT the hashtag #BigNETConference.

I can’t wait to see you show your #StripesforNETCancer!!!

Have a great weekend!

Tricia

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P.S. Keep an eye out tomorrow morning for our next Speaker Spotlight!

Wednesday Thoughts…

Happy Wednesday!

I came across this funny cartoon that I thought I would share.

googledoctor

This little cartoon is a reminder that WE usually are and should be the MOST informed person in the room about our disease. Just because a doctor says that they “know” about NET Cancers doesn’t really mean that they KNOW about NET Cancers.

Nothing truly scares me more than when a patient of any kind just 100% trusts a doctor, believing that doctors know everything so they don’t want to know or need to know the ins and outs of their disease because a doctor wouldn’t steer them wrong. The only truth in that manner of thinking is that a doctor wouldn’t be purposely steering you wrong.

Think about this: Yes, doctors go through a ton of schooling to become knowledgeable overall about anatomy and physiology and even a specific specialty but there is so much to learn about the human body that they cannot possibly learn everything there is to know about it in that time period. So maybe, if we’re really lucky, they possibly heard Carcinoid or NET Cancer once in their schooling but it’s honestly not all that likely that they remember the one time it was mentioned.

Seeing a doctor who will not continuously educate themselves to help treat you is detrimental to your health. It is so important to work with doctors who are open to being educated and up-to-date on the newest treatments and what options are out there. They should be open to your opinion and what you bring to the table because NO ONE will fight for you the way that YOU fight for you. Your care should be treated as a team, not a one person show.

There are so many ways to educate yourself. Join support groups, both online and in-person. Connect with other patients. (PLEASE be careful with what information you read and take online. Remember that every NET patient is different and not everything you see on the internet is true!) See a NET specialist, or TWO. Most importantly, take advantage of seeing NET specialists speak at conferences, not only do they help with the basics but they give you the most current information there is out there about our disease!

What you don’t know can harm you.

NCAN has our huge 2016 National NET Patient Conference coming up this September! This conference gives you the chance to connect with 500+ patients and caregivers with 20+ speakers in the NET specialty over 2 and 1/2 days! It is such an informative, important, and fun weekend!

For more information, click here.

To register directly, you may do so, here.

Until next time…

Tricia

The Speaker Spotlight – 2016 National Conference Edition Part 2

drramirez

Robert Ramirez, DO, FACP

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Bio:

Dr. Ramirez earned his medical degree from the University of Medicine and Dentistry of New Jersey School of Osteopathic Medicine.  He completed an internal medicine residency at Cooper University Hospital in Camden, New Jersey.  He then completed a combined hematology and medical oncology fellowship at the University of Tennessee Health Sciences Center in Memphis, Tennessee where he served as chief fellow.   He is board certified in medical oncology and internal medicine.  He is a Fellow of the American College of Physicians (FACP) and a member of American Society of Clinical Oncology (ASCO), International Association for the Study of Lung Cancer (IASLC), and the North American Neuroendocrine Tumor Society (NANETS). 

He has clinical and research interests in lung cancer, specifically non-small cell and small cell cancers as well as neuroendocrine tumors of the lung including DIPNECH, typical and atypical carcinoids.  He has given multiple presentations at National and International meetings on the topics of lung cancer and neuroendocrine tumors and has multiple peer reviewed publications.  He is a recognized thought leader in these fields. He splits his clinical and research duties between the Ochsner Lung Cancer Multidisciplinary Program and the Ochsner Kenner/LSU Multidisciplinary Neuroendocrine Clinic.  He is active in clinical trial design as well as teaching to fellows, residents and medical students.  

Dr. Ramirez’s clinical interests include: Non-small cell lung cancer, small cell lung cancer, neuroendocrine tumors of the lung, DIPNECH and neuroendocrine tumors of the GI tract.

To make an appointment, please contact Pam Ryan, RN:

NOLANETS-New Orleans Louisiana Neuroendocrine Tumor Specialists                  200 West Esplanade, Ste. 200                                                                                        Kenner, LA 70065                                                                                                                    (504) 464-8500                                                                                                                               or toll free: (866) 91-ZEBRA

For more information on the NOLANETS Group and Dr. Robert Ramirez, please visit their website here.

Dr. Ramirez at the 2016 National NET Patient Conference:

Topic: LungNETs and DIPNECH: Diagnosis and Therapy

When: Friday, September 23rd, 2016 at 3PM*

Note on topic from Dr. Ramirez:

“I am slated to give an overview of neuroendocrine tumors of the lung.  I have a particular interest in lung cancer and specifically all forms of neuroendocrine lung tumors ranging from DIPNECH to small cell.  This is an under represented portion of neuroendocrine tumors not only in research but in general awareness.”

SIGN UP NOW FOR THE 2016 NATIONAL NET PATIENT CONFERENCE in New Orleans, LA from September 22-24th to see Dr. Ramirez and 19 other experts speak on Neuroendocrine Cancer! 

Registration is $125 per person including

  • Thursday’s Welcome Reception 
  • Breakfast, Lunch, and snacks for both Friday and Saturday
  • And keep your eyes out for some special prizes!

Registration does not include your hotel stay or travel expenses.

For more information and to buy your ticket, click here!!

*Time and Date are subject to change.

You can also see Dr. Ramirez speak about the Basics of Lung Neuroendocrine at the 2016 LungNET Conference on Saturday, June 11th, 2016 in Denver, CO!!

Registration for the 2016 LungNET Conference is $25 per person and includes breakfast, lunch, and snacks!

Registration does not include your hotel stay or travel expenses.

For more information and to buy your ticket to the 2016 LungNET Conference, click here!

Want the chance to see BOTH amazing conferences? Sign up NOW to get FREE registration for the 2016 LungNET Conference when you register for the 2016 National NET Patient Conference. SEE HOW TO GET FREE REGISTRATION TO THE 2016 LUNGNET CONFERENCE!

Be sure to check out our Speaker Spotlight on Dr. Ed Wolin!

The Speaker Spotlight – 2016 National Conference Edition

Welcome to the NETCancerAwarenessBlog’s first of the Speaker Spotlight Series-2016 National Conference Edition!!

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Edward M. Wolin, MD

Director, Neuroendocrine Tumor Program, Montefiore Einstein Center for Cancer Care

Montefiore

Department: Oncology

Bio:

Edward M. Wolin, MD is an internationally recognized Neuroendocrine Medical Oncologist. Patients from all over the United States and abroad come to see him for access to personalized care and the latest diagnostic and therapy programs.   

Dr. Wolin graduated from Reed College in Portland, Oregon, and received his MD degree From Yale School of Medicine at Yale University in New Haven, Connecticut.  After serving as intern and resident in Internal Medicine at Stanford University, he became a clinical fellow at the National Cancer Institute in Bethesda, Maryland.  He returned to Stanford to complete his Fellowship in Medical Oncology before starting his academic career at the faculty of Washington University School of Medicine in St. Louis, Missouri.

Dr. Wolin was previously the Director of Neuroendocrine and GI Oncology Program and the Director of Clinical Research at the University of Kentucky Medical Center.  For the preceding 26 years, he held key positions at Cedars–Sinai Medical Center in Los Angeles, where he founded and directed of one of the largest and most productive Carcinoid and Neuroendocrine Tumor Programs in the country.

Clinical Focus:

Dr. Wolin treats all types of carcinoid and neuroendocrine tumors, ranging from tumors of the small intestine (carcinoid), pancreas, lung and colon to those of the rectum, appendix, stomach and other sites. These include hormone-producing tumors such as carcinoid (serotonin), gastrinoma (gastrin), insulinoma (insulin), glucagonoma (glucagon), VIPoma (VIP); liver metastasis, and carcinoid syndrome. 

Dr. Wolin is a critical member of Montefiore’s outstanding multidisciplinary neuroendocrine team, that includes medical oncologists, surgeons, gastroenterologists, endocrinologists, as well as specialists in nuclear medicine, interventional radiology, diagnostic radiology, and other areas.

Research Focus:

As Director of the Neuroendocrine Tumor Program at Montefiore Einstein Center for Cancer Care, Dr. Wolin brings a robust research program to Montefiore that supports multiple clinical trials. His research efforts focus on finding the most effective and least toxic treatments, such as pasireotide, lanreotide, everolimus, other m-TOR inhibitors, targeted radiation, including peptide receptor radiotherapy with Lu-177.

Dr. Wolin has pioneered the development of neuroendocrine tumor therapy with novel somatostatin analogs, mTOR inhibitors, anti-angiogenic drugs, and peptide receptor radiotherapy (PRRT) using 177Lu-DOTATATE, as well as PET imaging with 67GA-DOTATATE scanning.

His research also pursues new directions in immunotherapy, anti-angiogenic drugs, novel targeted biologic anti-cancer treatments, as well as targeted treatment of liver metastases. In addition, Dr. Wolin directs his research towards the development of new imaging and diagnostic procedures for carcinoid/neuroendocrine tumors.

To make an appointment, please call:

Montefiore M-E Center for Cancer Center                                                                         1521 Jarrett Place                                                                                                                  Bronx, NY 10461-2601                                                                                                            (718) 862-8840

Dr. Wolin at the 2016 National NET Patient Conference:

Topic: The Role of Chemotherapy in Well-Differenciated NETs

When: Friday, September 23, 2016 at 2PM*

Be sure not to miss Dr. Wolin speak! And don’t miss him on our panel answering your questions!!

For additional info on Dr. Ed Wolin, please see his profile here.

If you would like to read some of Dr. Wolin’s pulications on PubMed, you can do so here.

SIGN UP NOW FOR THE 2016 NATIONAL NET PATIENT CONFERENCE in New Orleans, LA from September 22-24th to see Dr. Wolin and 19 other experts speak on Neuroendocrine Cancer! 

Registration is $125 per person including

  • Thursday’s Welcome Reception 
  • Breakfast, Lunch, and snacks for both Friday and Saturday
  • And keep your eyes out for some special prizes!

Registration does not include your hotel stay or travel expenses.

For more information and to buy your ticket, click here!!

*Time and Date are subject to change.

Big NET Conference – 2016 National NET Patient Conference

Happy Spring Zebra family!

I hope you are having a great start to 2016 and that you are as excited as we are about the amazing events taking place this year! You’ve probably seen the great agenda for the 2016 National Conference in New Orleans, LA in September! We have been super busy confirming our schedule of speakers and getting preparations moving now that we are officially just 6 short months out! This is the first of a series of blogs that I will be posting to give a bit more insight into the process as well as to share the benefits you will get by signing up for this awesome event. For those of you who are new to the NET Cancer community, the National Conference is NCAN’s largest event. These information packed weekends happen every other September and provide NET cancer patients access to 20+ NET specialists from all around the country. Where else can you go to share the latest and greatest updates in 2 and a half days?! And don’t forget- you’re right on the trolley line so you can spend some time soaking up the good food and fun in New Orleans (more on that later, I promise.)

Not only will you have the opportunity to listen to and speak with these specialists during this weekend, you will also a wonderful chance to network with 500+ NET Cancer patients and their caregivers from across the country as well. We all know how great it is to finally connect with those who understand what we experience. This year, there’s a new system, so patients who choose to participate can identify each other by primary site location to aide in the networking process. We are so excited to see how this new system helps and get your feedback on it.

Here’s the full story about this year’s National Conference: It is in New Orleans, LA from September 22nd, 2016 to September 24th at the Hyatt Regency, 601 Loyola Avenue, right next to the Superdome. Registration fee for the 2 ½ day event is just $125 per person and that includes breakfast, lunch, and snacks for Friday and Saturday as well as a free reception on Thursday night. Also included are your event materials- and be sure to watch out for some fun giveaways! Hotel accommodations aren’t included in this price and need to be booked separately (I will leave the link below.) It costs $149 per night (Thursday, Friday, and Saturday) for a double occupancy room and the Hyatt will honor that special rate for two nights prior and two nights following for those who would like to extend their stay. To get our rate, you must book BY August 22nd, 2016. After this date, prices will be at the discretion of the Hyatt and what their rack room rate at the time is.

Please, please, please be sure to register as early as possible because as the date gets closer, we cannot guarantee open spots and cannot guarantee open rooms at the hotel and this conference is one that you don’t want to miss!

You can find registration information, including the itinerary here: http://www.classy.org/BigNETConference

Hotel accommodations can be made here: https://resweb.passkey.com/go/natlCNtumorpatientconference 

Be sure to keep an eye out for my next blog and if you have any questions, please don’t hesitate to send me an email at tricia@netcancerawareness.org or leave me a message on here!

The countdown is on! See you soon…

Until next time,

Tricia Wahmann-Knatz